What is Dementia? Part 3

Are there any legal issues that will need attention?
It may be necessary for the person with dementia to make an Enduring Power of Attorney – this is a legal way of choosing someone to take charge of their financial affairs when they are no longer able to do it themselves. (NB In 2007, Enduring Powers of Attorney will be replaced by Lasting Powers Of Attorney, which will also cover some personal welfare as well as financial matters). And of course, it is vital that the person with dementia makes a will, so that their wishes are respected when they die.

A solicitor can help with making an Enduring/Lasting Power of Attorney and a will. If they drive, people with dementia have a responsibility to inform the DVLA (Drivers and Vehicles Licensing Authority) of their condition (contact them on 0870 6000 301). Having dementia does not necessarily mean a person will have to stop driving right away, although there will come a time when they will no longer be able to drive. Until then, a license can be issued on the understanding that it will be reviewed every year.

What practical help can I get with caring?
Some people feel it’s their duty to provide care alone, but there is professional help available – for example, social service departments can provide home care services, help with laundry and meals, and advice about safety aids (see Accessing Services).
In some areas there are day care centres you and/or the person with dementia can attend. Caring for someone with dementia can be exhausting, so it is vital that you take breaks and get as much help and support as possible (see part four, Looking After Yourself ).

It can also be stimulating for people with dementia to socialise with others and enjoy a change of environment and activities. There are some organisations, such as Crossroads, The British Red Cross and For Dementia (see part 5 – Useful Contacts), which may be able to help with nursing care or providing safety equipment to fit around the house. Social services may also be able to advise on home adaptations.

Will I be able to get financial help while I am caring?
Caring for someone with dementia can have a big effect on your income, especially if you or they have had to give up work. If this happens, you may both be entitled to welfare or disability benefits, such as attendance allowance or the carer’s allowance.
To find out about benefits, call the Benefit Enquiry Line for people with disabilities on 0800 88 22 00, or contact your local Citizens Advice Bureau (see part five, Useful Contacts). Your social services office will also be able to assess you for ability to pay for the professional support they provide (see Accessing Services, below).

What medical treatments will be prescribed to help the person I care for?
There are several drug treatments that are thought to relieve some of the symptoms of Alzheimer’s disease, although they do not work for everyone, and they are not a cure. The most common of these are known as cholinesterase inhibitors, and include the drugs Aricept, Exelon, and Reminyl. However, the body responsible for treatment recommendations, NICE, has been reviewing its guidance about whether these drugs should be prescribed free on the NHS, and a decision is expected in Autumn 2005.

In the meantime, these drugs can be prescribed for people with mild to moderate dementia, and you should speak to your GP initially who may refer you to a specialist who can advise about whether they may be suitable for the personyou care for. People with Vascular dementia may be given drugs to thin the blood or correct irregular heartbeat, which may help reduce the risk of further strokes.